Have ME/CFS

With ME/CFS
About You

1. What is your gender?*

2 What is your age?*

3. What country do you live in?*

4. What is your ethnicity?*

What is your highest level of education?*

About your ME/CFS

6. Who recognised your symptoms as ME/CFS? (or any other term that falls under the ME/CFS umbrella)*

If you selected Specialist or Other, in what field does this person practice?

6a in what country was your ME/CFS recognised?

6b. At what age was your ME/CFS first recognised?

7. How long did it take for you to be diagnosed after onset of symptoms?*

8. In what industry do you work?*

8a. How many hours per week do you work?*

8b. How long have you been in this job?*

8c. How many people are employed in your place of work?*

9. Where you working in this job when you were recognised to have ME/CFS?*

9a. If Yes, at what stage of your diagnosis journey did you inform your employer of your ME/CFS?

9b. If No, at what stage in the hiring process did you inform your employer of your ME/CFS?

10. Do you feel your employer understands your ME/CFS?*

11. What (if any) barriers do you feel are in your workplace that prevent you from performing to the best of your ability?

12. Have you experienced any discrimination, negativity or lack of belief of your ME/CFS in your workplace?*

Any other comments you wish to make about discrimination, negativity or lack of belief about your ME/CFS? (optional)

Are there any other comments you would like to make?

Thank you for taking the time to complete this survey.
If you wish to receive a copy of the research results please enter your email address below, to remain completely anonymous, leave this field blank and simply click finish.

Your email address will be stored separately to the raw data of this questionnaire and only used for the purpose of sending the research results once complete.

If you have any questions or concerns you can contact myself, Sarah Jansen, 2020001389@student.sit.ac.nz or my supervisor Nicola Swain Nicola.Swain@sit.ac.nz

Email Address